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Resources

Helpful Links

Organizations Offering Support and Assistance:

American Dietetic Association (ADA)
www.eatright.org
The American Dietetic Association is the premier source for trustworthy, science-based food and nutrition information. As the world’s largest organization of food and nutrition professionals, ADA is committed to improving the nation’s health and advancing the profession of dietetics through research, education and advocacy.

Benefits Checkup
www.benefitscheckup.org
A service of the National Council on Aging, this government run site is specifically for seniors and disabled individuals with limited income and resources. No identifying information is required, simply input data about your ability to work, age, financial situation and location, and the website will list potential benefit programs ranging from heating and energy assistance to prescription savings programs and income supplements.

Good Life Resources, Inc.
www.goodliferesources.com
(800) 227-2111
A specialty pharmacy service that provides simple, cost-effective help for people living with chronic health conditions and easy access to long-term maintenance medications.

National Foundation for Transplants (NFT)
www.transplants.org
(800) 489-3863
(901) 684-1697
This organization works to increase donor awareness and offers support to individuals waiting for transplant.  Additionally, they assist patients in all 50 states with fundraising campaigns to assist with their lifelong transplant expenses.

National Transplant Assistance Fund (NTAF)
www.transplantfund.org
(800) 642-8399
(610) 535-6100
A leader in fundraising assistance and support for transplant and catastrophic injury, NTAF helps transplant patients raise money for expenses not covered by insurance.  They offer a one-time assistance grant of $1,000 after the patient and family have raised $10,000.

NeedyMeds
www.needymeds.com
NeedyMeds is a nonprofit that helps qualifying patients that cannot afford medicine of health care costs connect with medication assistance.

Partnership for Prescription Assistance
www.pparx.org
(888) 477-2669
The Partnership for Prescription Assistance helps qualifying patients who lack prescription coverage to get the medicines they need. This site offers a point of access to more than 475 public and private patient assistance programs.

Second Wind Transplant Association, Inc.
www.2ndwind.org
(888) 855-9463
This lung transplant only website includes message boards, information, resources, support and more for patients and families considering transplant surgery or individuals that have already completed the process.

SRTR – Scientific Registry of Transplant Recipients
www.ustransplant.org
(877) 970-SRTR
One of the most highly respected and referenced registries in any field of medicine, SRTR provides reports and data on solid organ transplantation.

TransplantBuddies
www.transplantbuddies.com
This site provides information about the transplant process, resources covering drugs and side effects, and daily discussions about living life as a transplant patient. The site also includes members’ photos and life stories covering experiences of both transplant recipients and donors.

Transplant Recipients International Organization, Inc. (TRIO)
www.trioweb.org
(800) TRIO-386
(202) 293-0980
This organization offers information about transplants to patients, family members and healthcare professionals and links pre-transplant candidates to others who have had or are also waiting for organ transplants. It also offers information about legislation that affects transplants and ways to get involved.

United Network for Organ Sharing (UNOS)
www.unos.org
(888) TXINFO-1
(888) 894-6361
The UNOS site provides statistics on wait lists, surgery, transplant programs, and patients. It also includes links to many articles and websites related to transplantation – facts and myths and several patient tools, including how to calculate LAS score.